Wednesday, April 20, 2016

#iwishpeopleknewdiabetes

Today, April 20th is #iwishpeopleknewdiabetes day! This was started by Kelly Kunik, who I met just last week at the Medtronic Diabetes Advocate Forum.  It is meant to spread awareness about diabetes on more of a personal level, as anyone can google 'diabetes' and find what it means to have diabetes, but does the public really know what people living with diabetes do and feel every single day?

I decided to come up with 3 quick things that I wish People Knew about Diabetes, specifically with my diabetes.  I say 'my' because everyone deals with diabetes differently, and my experience living with diabetes can be much different from say, the little girl I nanny with diabetes, even though we both have the same diabetes.


#iwishpeopleknewdiabetes

#1. I wish people knew diabetes takes up a lot of my time & mental space.   Diabetes is a 24/7 disease, but that is easy to say and harder to understand.  I am having to worry about my diabetes on almost a constant basis, for instance, if I am going for a walk, I need to think about what my blood sugar is going to do? Will I go low? Will it spike? Should I set a temp basal? Or should I suspend my pump? How far am I going to walk? Should I have a snack first?  Am I tired from the walk or tired because I am low?  The list goes on.

#2. I wish people knew diabetes has no cure. I don't know how many times I have been asked if I will always have diabetes.   As of right now there is no cure, and even though you may have read about cinnamon pills, orka diets or Dr. Oz curing diabetes, none of that is true nor helpful.   I must manage my diabetes through insulin, and that is that. 

#3. I wish people knew diabetes is scary. Now, don't get me wrong, I don't walk on egg shells. However, living with diabetes can take you to dark places.  It can make you think about the worst on the best of days.  There is a long list of complications connected with diabetes and to save you the google search time, anything that you can think of is awful, is basically a complication of diabetes.   I worry about my future and my health, from my head to my toes, literally. 


The list could go on and on, but my to-do list for the day also goes on and on.  

For more information about the day visit: www.iwishpeopleknewthatdiabetes.org 

Kayla 


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